Other related outcomes research
CSG-COUSIN
CSG-COUSIN is a research group that is open for everyone with an interest in outcomes research and evidence-based dermatology and with enthusiasm to develop and implement Core Outcome Sets (COS) in dermatology.
https://www.uniklinikum-dresden.de/COUSIN
Acne
Jerry Tan (Canada), Alison Layton (UK) and Anne Eady (UK) are working on harmonising outcome measures for acne (ACORN). If you are interested in getting involved, then please contact Dr Jerry Tan on jerrytan@bellnet.ca
A delphi exercise has already been conducted:
Tan J, Wolfe B, Weiss J, Stein-Gold L, Bikowski J, Del Rosso J, Webster GF, Lucky A, Thiboutot D, Wilkin J, Leyden J, Chren MM. Acne severity grading: Determining essential clinical components and features using a Delphi consensus. Journal of the American Academy of Dermatology - 31 October 2011 (10.1016/j.jaad.2011.09.005)
Anne Eady and Alison Layton are hoping to conduct a James Lind Alliance Priorisation Exercise for acne - if you are interested in getting involved with this please contact Anne Eady on
eaeady@gmail.com
Pain
The aim of the Initiative on Methods, Measurement, and Pain Assessment in Clinical Trials (IMMPACT) is to develop consensus reviews and recommendations for improving the design, execution, and interpretation of clinical trials of treatments for pain.
The first IMMPACT meeting was held in November 2002, and there have been a total of fourteen consensus meetings on clinical trials of treatments for pain - twelve on trials for chronic pain in adults, one on trials for acute pain in adults, and one on trials for pediatric acute and chronic pain.
Other outcomes research
If you are working on outcomes research for any other skin disease and would like to include a link here, please get in touch.