Quality of Life (QoL)
Systematic reviews of the measurement properties of QoL instruments for adults and children have been conducted. These reviews showed that there were significant gaps in the validation of all available skin-specific instruments. The results of the adults and children reviews were discussed at the HOME IV and HOME V meetings respectively, where no consensus was reached on recommending a core outcome instrument.
Work is ongoing to fill the validation gaps, with the focus on QoL in children initially. If you are currently developing or carrying out validation studies on skin-specific QoL instruments, or if are interested in joining this working group, please contact us.
Measurement properties of adult quality-of-life measurement instruments for eczema: protocol for a systematic review
Apfelbacher CJ, Heinl D, Prinsen CA, Deckert S, Chalmers J, Ofenloch R, Humphreys R, Sach T, Chamlin S, Schmitt J.
Syst Rev. 2015 Apr 16;4(1):48 (Abstract Link)
Measurement properties of quality-of-life measurement instruments for infants, children and adolescents with eczema: a systematic review
Heinl D, Prinsen CA, Sach T, Drucker AM, Ofenloch R, Flohr C, Apfelbacher C.
Br J Dermatol. 2016 Aug 20 doi: 10.1111/bjd.14966 (Abstract Link)